Or, if this is the first you’re seeing of this blog, here I am!
I initially started this blog as a place to air my thoughts and I wanted the space to be free to be as personal as I needed. I didn’t want to link it to my Facebook or any other social media in case it was upsetting for family or friends to hear any devastating details at the worst of times. They were, after all, going through it right alongside me.
But now we have some distance, so perhaps I don’t have to hide or censor any posts. Some things maybe certain people should decide not to read. Some things are the reality of it all and it would be disingenuous to pretend my mind didn’t go there.
I had a quiet period of no posting for a few months. We were waiting to hear when and where (and how) I’d be treated, and my physical condition declined fairly steeply after mid-August. I simply didn’t have the energy to do more than cling on to uni and just try to see my friends as often as possible. It was pain, and disrupted sleep, and struggling to eat.
Then we started the GoFundMe to pay for the treatment trip, mobility assists and the catheters, and that projected me into the public eye in a way I’m still struggling to get a handle on. It has been a whirlwind. We had a bake-sale at the uni, an entire comedy gig at the Rhino Room, articles in the Advertiser, News.com, and Yahoo News. I’ve been overwhelmed by how much support I’ve received.
Then I had treatment, and wow has that swallowed the end of my year. I can’t believe how long I’ve been here. Every day has been an eternity and gone so fast.
What I plan to do is post the treatment updates from my GoFundMe page, for posterity and so everything is all in one spot. From there I’ll blog as I please without worrying I’m sending email notifications to people who don’t want to read a whole essay just to get an update on how I’m doing. GoFundMe will get only occasional updates, if I don’t close it now that there’s a link to me available here.
So welcome to whatever this is, I guess.